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Monthly Archives

June 2019

The case of competing demands

By | Book Blog | 95 Comments

I have come to realize that the problems of life and living that come with all aspects of the transplant are due, in part at least, to the serious medical issues that are involved. Think about: liver disease, organ failure, waiting on the list, then surgical healing, lab values, rejection, infections and the many other medical problems the transplant team deals with. Thus there is little to no time for the transplant team to to sit and explore problems of living.

I know myself, I would have many questions about why I was so forgetful and could not sleep, and so on. I would get to the Dr.’s office and my attention would refocus on my physical health, my lab values, and my MELD score.

Its not that the transplant team is not concerned, I know from working closely with them, they are very concerned. Each of the professionals on the team have a purpose, a responsibility, and unless you have access to the person responsible- if there is one-it may be hard to find these answers. There lies the case of competing demands…

I wanted to share some articles which reflect my journey!

By | Book Blog | 74 Comments

This first article is about how I coped with the pre-transplant waiting period and returned to work afterwards.  My involvement in the Ropes course was months before I went into liver failure.  It epitomized the way I liked to spend my discretionary time.

Once I went into liver failure, I soon realized I could no longer participate in activities like this. The attention it took to protect others during high elements exceeded my capacity as encephalopathy made me forget small but essential steps. I had to quit my involvement as a course instructor, although I continued to take my students to participate in the ropes course challenge. Advance magazine

While I was waiting for my second transplant we were contacted by a  newspaper,  the Hollywood Gazette, in our hometown. We were happy to  again tell our story. Any way to get the word out about organ transplantation is very important. article in my hometown newspaper

This third link is to an  feature about me in the Florida International University Magazine. I remember being very nervous, not about the article, because again- any way to get the news out about organ transplantation is a good thing. I was nervous because the practice of this profile was to use a full-length photo. The prior featured alumni was a theater major who made it big in Hollywood! featured alumni FIU magazine.

The link to this article in OT Practice, is clearly the most important and you will see it linked elsewhere on this website. I wrote this by invitation to contribute to a series of occupational therapists who, themselves had experienced a disabling condition. It was the easiest piece I have ever written as the words of my experience as a patient were so easy to express and the message I wanted to convey to other patients and to health providers, so strong. I am honored to have this article be included in the  handbook for transplant candidates at the University of Miami-Jackson Medical Center article I wrote in OT practice about my experience.