This first article is about how I coped with the pre-transplant waiting period and returned to work afterwards. My involvement in the Ropes course was months before I went into liver failure. It epitomized the way I liked to spend my discretionary time.
Once I went into liver failure, I soon realized I could no longer participate in activities like this. The attention it took to protect others during high elements exceeded my capacity as encephalopathy made me forget small but essential steps. I had to quit my involvement as a course instructor, although I continued to take my students to participate in the ropes course challenge. Advance magazine
While I was waiting for my second transplant we were contacted by a local newspaper, the Hollywood Gazette, in our hometown. We were happy to again tell our story. Any way to get the word out about organ transplantation is very important.
This third link is to a feature about me in the Florida International University Magazine. I remember being very nervous, not about the article, because again- any way to get the news out about organ transplantation is a good thing. I was nervous because the practice of this profile was to use a full-length photo. The prior featured alumni was a theater major who made it big in Hollywood!
The link to this article in OT Practice, is clearly the most informative and you will see it linked elsewhere on this website. I wrote this by invitation to contribute to a series of occupational therapists who, themselves had experienced a disabling condition. It was the easiest piece I have ever written as the words of my experience as a patient were so easy to express and the message I wanted to convey to other patients and to health providers, so strong. I am honored to have this article be included in the handbook for transplant candidates at the University of Miami-Jackson Medical Center.